I hope they know…….. is ultimately a self-help guide that discusses many areas of care. The contributing authors have generously added their experiences and knowledge to this book.
Zoë A. Lewis, M.D., DAAHPM, FACP received her medical doctorate summa cum laude from the University Of Rome School of Medicine, ‘La Sapienza’, Rome, Italy. She completed her internal medicine residency training in the University of Pennsylvania Healthcare System, Philadelphia, Pennsylvania. She is board certified in Internal Medicine and Hospice and Palliative Medicine. She has been a diplomat of the American Academy of Hospice and Palliative Medicine, (DAAHPM) and was an elected Fellow in the American College of Physicians, (FACP).
Dr. Lewis has worked with numerous hospices in Miami, Florida and Boston, Massachusetts. She is the former Corporate Medical Director for Beacon Hospice and Palliative Care, Inc. in New England and received specific acknowledgement for her leadership efforts by the National Hospice and Palliative Care Organization in their 2006 guide, 'Caring for Persons with Alzheimer’s and Other Dementias, Guidelines for Hospice Providers'.
As an internist in Boston, she provided primary care at Brigham and Women’s Physician Group and for patients in the Caritas Christi Healthcare System. She held academic teaching positions at University of Pennsylvania, Tufts University Medical School, Brigham and Women’s Hospital and Harvard School of Medicine. Active in both physician and community education on issues of end-of-life care and general medicine, she has regularly presented medical grand rounds in New England, South Florida, and nationally for hospice and end-of-life care conferences. She has numerous publications to her credit. She currently works as a hospitalist in Massachusetts, Pennsylvania, Colorado and Florida. She has been a consultant for hospice programs. She produced and hosted the radio program Hope Through Knowledge Radio on Blogtalkradio. She was a featured speaker discussing her books and work on dementia using art and music therapy for dementia caregiving at the Aging in America Conference, sponsored by The American Society on Aging and the National Council on Aging 2009.
Elizabeth Cockey, M.A.T is a Baltimore based art therapist and consultant to healthcare facilities about the utilization of art programs for recovery. Elizabeth has worked with Alzheimer’s and stroke dementia clients for the past 15 years. She holds degrees in art, psychology, and a master’s degree in art therapy. Elizabeth is also an artist, a motivational speaker and the author of Drawn from Memory: A Personal Story of Healing through Art. She is a member of the American Art Therapy Association and the American Society on Aging. www.elizabethcockey.com
Suzanne B. Hanser, EdD, MT-BC is Chair of the Music Therapy Department at Berklee College of Music, Boston, Massachusetts. She is Past President of the World Federation Music Therapy Association and the American Music Therapy Association. She is currently a Research Associate and Music Therapist at the Dana-Farber Cancer Institute in Boston. She has more than 200 scientific publications and three published books including The NewMusic Therapist's Handbook, in its third edition and When You Wish upon a Star. She is an internationally recognized speaker at psychiatry, psychology, education, music, gerontology and special education conferences. Her past academic responsibilities are numerous and include positions as the former professor and chair of music therapy at the University of the Pacific,and past program director of the Alzheimer’s Association greater San Francisco Bay area. She has received numerous research grants and a National Service Award from the National Institute on Aging. Her work has been covered on local and national television programs and other forms of media coverage therapist that he or she can be totally with the client and tuned in to what he or she needs at the moment, totally empathizing and understanding not only what the person's saying, but what they're feeling.”
Myron Weiner, M.D. is a geriatric psychiatrist whose primary interest is in managing the emotional and behavioral symptoms of dementing illness. Dr. Weiner is Professor of Psychiatry and Neurology at UT Southwestern Medical Center at Dallas, Texas, where he formerly headed the Geriatric Psychiatry Residency Program and Clinical Core of the UT Southwestern Alzheimer's Disease Center. He holds the Aradine S. Ard Chair in Brain Science and the Dorothy L. and John P. Harbin Chair in Alzheimer's Disease Research. He has more than 200 scientific publications to his credit, including the third edition of The Dementias: Diagnosis, Treatment, and Research, published by American Psychiatric Publishing, Inc. in 2003. He is senior editor of the American Psychiatric Publishing, Textbook of Alzheimer Disease and Other Dementias, which will appear in the fall of 2008. His primary research is in treatment of Alzheimer’s disease and its behavioral/psychological consequences, including impact on caregivers. His exploration of the impact of cardiovascular risk factors in the development of Alzheimer’s disease in American Indians led him to establish a telemedicine link for dementia evaluation and follow up with the Choctaw Nation of Oklahoma. Dr. Weiner has received the Texas Society of Psychiatric Physicians Psychiatric Excellence Award, is a Distinguished Life Fellow of the American Psychiatric Association, and the Castle Connolly Medical Ltd. Award for America's Top Doctors. Dr. Weiner and colleagues developed the Quality of Life in Late-stage Alzheimer's Disease (QUALID) scale, now used around the world in studies of interventions for late-stage Alzheimer disease patients. He also was a developer of the Test of Everyday Functional Abilities (TEFA), an ecologically valid scale for use in determining level of competence at activities of daily living. http://www.utsouthwestern.edu
Patricia Munhall, EdD, NCPsyA, CHt, ARNP, has twenty-three years practicing psychoanalysis and psychodynamic psychotherapy. She is the founder and director of the International Institute of Human Understanding. Her special clinical interests span a wide range of clients and she has facilitated quality of life and emotional growth and personality integration for a diverse client population in addition to many other areas of interest and clinical specialization. She has been a former Professor of Nursing for thirty years at various universities, including Hunter College, CUNY, Teachers College and Columbia University. Dr. Munhall has authored 11 books and over 60 articles. She writes of the experiential nature of man, woman and family in the 21st century. The Emergence of Man into the 21st Century, The Emergence of the Family Into the 21st Century, The Emergence of Women Into the 21st Century, Research: A Qualitative Perspective (3rd edition), Qualitative Research Reports and Proposals: A Guide, Revisioning Phenomenology: Nursing & Health Science Research, In Women's Experience (Volume I), In Women's Experience Volume II. Dr. Munhall is a recognized international speaker on numerous topics including ethics, the art of listening, family dynamics and depression. She was voted “Best Of” Psychotherapists by Family, Health, and Fitnessmagazine. She is in clinical practice in Miami, Florida.
Kino MacGregor, M.A. is the founder of Miami Life Center, an urban retreat space dedicated to the study of yoga, holistic health and consciousness. Located in Miami Beach, Florida, the Miami Life Center offers daily yoga classes, life coaching, and trainings as well as workshops with international leaders in yoga and spirituality. Kino and the Miami Life Center have been featured in Yoga Journal, Yoga Magazine, Yoga Joyful Living, the Miami Herald, EuroMan, Travel & Leisure Magazine, Ocean Drive Magazine,Daily Candy, Six Degrees Magazine,as well as appearing on The CBS Today Show. Kino is one of a select few people to receive the certification to teach Ashtanga Yoga by its founder Sri K. Pattabhi Jois in Mysore, India. She has produced three Ashtanga yoga DVDs (Kino MacGregor – A Journey, A Workshop; Ashtanga Yoga Primary Series; Ashtanga Yoga Intermediate Series), an Ashtanga yoga practice card and a podcast on yoga. She is currently working on one more DVDs and book about her personal experiences in yoga. Kino is dedicated to carrying the torch of Ashtanga yoga throughout the world and sharing the amazing tradition of Ashtanga yoga with everyone who is inspired to practice. In her unique, inspirational and playful approach Kino helps all her students expand and deepen their understanding of yoga and life. http://www.miamilifecenter.com
Fanny Barry, M.S. is a writer, artist, and breast cancer survivor. She has a Master of Science in Communications and Public Relations, and a Bachelor of Science in General Engineering, both from Boston University. A native of Boston, Massachusetts, she completed treatment for breast cancer in 2004. During her treatment and into recuperation she kept journals of her experience which became the basis for her illustrated book series: I Wish I Knew; I Wish I Knew How to Help, and I Wish I Knew Who I Have Become. These books represent her personal observations on how her life and the lives of those closest to her changed while undergoing treatment for cancer. Cancer left her with a great desire to share her insights with other patients and survivors to help them cope emotionally. After recuperating, she developed That Barry Girl Foundation, Thriving, not just Surviving to accomplish this desire: to offer emotional, financial and recuperative support for breast cancer patients and survivors. http://www.thatbarrygirl.org
Debbi Dickinson, B.A. has a B.A. degree in Psychology from Westfield State College, Westfield, Massachusetts. She holds numerous advanced certifications and completed the Bereavement Specialist Skills Training and Certification Program by the American Hospice Foundation and World Pastoral Care Center. Debbi's work has appeared in over 400 publications. She is the author of HeartSongs and Whispers in the Wind. Debbi gives presentations nationwide to the bereaved as well as to professionals. www.debbidickinson.com
I Hope They Know:The Essential Handbook on Alzheimer's Disease and Care. Published 2008.
This book is intended for individuals, their families and care givers dealing with a new or existing diagnosis of Alzheimer's disease or other form of dementia.
Straightforward concise chapters deal with the the essentials - the essence behind the title - "I hope they know.....". Each chapter addresses a care giver or patient need and offers solutions, strategies and concludes with additonal up-to-date resources and reliable contact information. It is praised by reviewers as "a complete guide".
Dr. Lewis brings 16 years of medical expertise as a clinician and her background as a hospice medical director - coupled with worldwide research and guest authors, to make this a remarkable and unique book. "I needed to address the helplessness folks have as they face this horrible disease, with no cure, as it inexhorably robs its victims of memory and human dignity."
This one book holds the key to hope for care givers of those with Alzheimers and other dementia diseases. Loved ones of those with Alzheimer's disease will get solid grounding in the current care practices. The book has had rave international reviews and is a listed resource with the Alzhiemers Association in North America.
About Dr. Zoë and her Contributing Authors
no longer in print - used copies only
"Espero que sepan: La guía holística para la enfermedad de Alzheimer,”
Zoë A. Lewis M.D. FACP, DAAHPM (Doctora en Medicina, diplomada por la Academia Norteamericana de Cuidados de Hospicio y Medicina Paliativa (DAAHPM), miembro electo del Colegio de Médicos Norteamericano (FACP). Completó su práctica y residencia en el Sistema de Salud de la Universidad de Pensilvania en Filadelfia, Pensilvania. Certificada por el consejo en medicina Interna, cuidados paliativos y de hospicio. Diplomada por la Academia Norteamericana de Cuidados de Hospicio y Medicina Paliativa (DAAHPM), es miembro electo del Colegio de Médicos Norteamericano (FACP). Ha ocupado cargos de enseñanza académica de medicina clínica en la Universidad de Pensilvania, en Tufts University y en la Facultad de Medicina de Harvard
No longer in print - used copies in circulation
Dr. Zoë and the Press for her books
Alzheimer's Offspring Confront Their Own Risk
New Books On Alzheimer's Will Be Listed Among Resources With The National Alzheimer's Association
Locum Tenens Physician Creates Her Own Schedule
Natural Therapies for the Prevention of Alzheimer's Disease
Economic Woes Hard On Those With Alzheimer's And Their Caregivers
The Age of Alzheimer's
Harvard Medical School Instructor Warns About Financial Impact Of Alzheimer's On Families
Brain & Behavior - A New Way To Predict Alzheimer's? (And Ways To Ward Off Memory Light)
Listed as a National Alzheimer's Association Resource
"The book I wanted to recommend to my patients and their loved ones on
Alzheimer's care giving simply did not exist. So I wrote it myself." Dr. Zoë A. Lewis
Authored by Lewis and seven renowned contributing authors, 'I Hope They Know... The Essentials of Alzheimer's Disease and Care,' focuses on the questions and solutions that arise as the disease progresses from early diagnosis to the advanced end stage. Individuals with early disease benefit with comprehensive planning strategies. Those with moderate and late stages will get solid grounding on care practices and therapies used today. Many topics are not covered in any other one source. Families claim it saves time, money and effort. This is among the best books for value, scope, expertise, optimism and holistic approach, as well as traditional medical care. One powerhouse of hope for someone with Alzheimer's or other related dementia illness.
"This new book touches with sensitivity difficult topics, including: changes in sexuality,
risky driving behavior, financial vulnerability, legal issues, and protection of personhood,
medical ethics, and advance directives."
The Journal of Gerontological Nursing
“You can be sure that this book is appropriately included in our
collection and resource lists moving forward.”
Alzheimer’s Association, National Office, Dr. Peter Reed
“The book is a holistic reference that may help reduce symptoms and
improve functioning and quality of life.”
National Hospice and Palliative Care Organization
Dr. Lin Noyes Simon
“Wonderful! Should be in every household that deals with Alzheimer's Disease.”
Angel Care Management, Miami, Florida
Jacqueline Hertz, RG, GCM
“It is a definite departure from the plethora of books on the subject of Alzheimer’s and invites readers to look directly at what is possible to improve the quality of life.”
Dr. Facundo Manes, Professor of Behavioral Neurology and Cognitive Neuroscience
Favaloro University, Buenos Aires, Argentina.
“Kudos to Dr. Zoë A. Lewis for including a chapter on music therapy in her book on Alzheimer’s disease and for using world renowned Dr. Suzanne Hanser as the author.”
Professor Isabelle Frohne-Hagemann
Co-founder of the Institute for Music, Imagery and Therapy (IMIT) in Berlin, Germany
“The book gifts the presentation of integrated healthcare that will become the standard of tomorrow.”
Atlantic Institute of Oriental Medicine, Miami Florida
Dr. Isali Ben-Jacob, DOM, AP, Professor of Oriental Medicine
“Skillfully combines medicine, art, science and a wide range of practical advice resulting
in a thoughtful and thought provoking book.”
Barbara Bagan, Ph.D., ATRBC
Professor in Charge of Expressive Arts Therapy Ottawa University, Phoenix, Arizona
“There is no one book, or such a passionate care giver as Dr. Lewis. She knows the vast sweep of needs facing patients and families. Readers will find the essential resources her book is intended to provide – from the beginning of the disease through the final stages.”
Richard P. Singer M.D., FAAN, Neurologist and Alzheimer's Disease Researcher, Sunrise, Florida
“As the caregiver for two parents with dementia, I found the book a delight and a comfort. Her work with dementia in the end-stages is amongst the most skillful I am aware of.”
Joseph Karpicz M.D., North Shore Medical Center, Salem, Massachusetts
“This book will lead the reader to a compassionate understanding of this population.”
Author of ‘Comfort Touch Massage for the Elderly and the Ill’
Mary Kathleen Rose
"Dr. Lewis is a people person, a natural born teacher. Her genius is that she can take a
complicated topic on dementia, strip it to basics, and in so doing, shares her knowledge
as a clinician and her gifts as an educator for care givers - on any level."
Jacksonville, Florida, patient
Pastor Malcolm Armstrong
"Dr. Zoë's valuable book is a must read for those newly diagnosed or really at any stage of Alzheimer's Disease, as well as the entire family. In short to-the-point chapters, she shares advice based on 15 years of experience as medical doctor, delivering essential knowledge plus topics most doctors tend to avoid: Changes in sexuality; Guilt about long term care placement; Nutrition and feeding tubes; Incontinence; Calming methods of art and music therapy, and much more. Also included are empowering self tests to help with when to take away the car keys--and managing stress and burnout. Zoë was a fantastic guest on my radio program and she did a great job interviewing me on her show, Hope Through Knowledge Radio. I am honored to be her colleague!
Eldercare Advocate: Author, Publisher, International Speaker, Radio Host
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